難忘的週末:阿羅黑德湖的兄弟情誼
有些人是以老友身分前來,有些人則是初次見面。在丹·惠勒位於箭頭湖的家中度過一個週末後,這份區別已不復存在。當倖存者們齊聚一堂,無需多言時,便會出現這樣的景象。
多年來,那些最重要的對話一直存在於 Reddit 討論串和 Facebook 群組中。我們打造了一個更理想的地方:一款專為倖存者、抗爭者、支持者及照護者設計的私密會員制應用程式。以下是應用程式的內容。
A private digital home for survivors, fighters, supporters, and caregivers, built by the Testicular Cancer Foundation, for our community. Not Reddit. Not Facebook. Ours.
請使用 Discord 或您的電子郵件地址登入app.testicularcancer.org。設定個人檔案約需一分鐘。
Our main website is the public face of TCF: fundraising, awareness, events, and the educational content that meets men at the moment they search "testicular cancer symptoms" at 2 AM. It does that job well.
But there's another job we've been wanting to do for years: give the community a private place to find each other. Somewhere conversations and identity live behind a login, not on a public Facebook group or a sprawling Reddit thread. Somewhere built specifically for the people who've lived this, and the people who love them.
這就是「Cojone Club」App 的本質。這是一款僅限會員使用的網路應用程式,其設計理念很簡單:讓懂它的人,只需輕點一下就能聯繫上。
只需登入一次,您就能獲得最新動態、社群地圖、維持身心健康的實用工具,以及與曾有過類似經歷的人士直接聯繫的管道。以下是整體概況。
Share an update, a milestone, a hard day. React with hearts. Reply. The whole point is that everyone in the feed gets it, because they've lived a version of it.
The app links directly into TCF's private Discord, 580 members and growing, so you can jump from someone's profile straight into a DM, land in #introductions to say hello, or join one of the channels organized around different parts of the TC journey.
這兩個空間相輔相成。應用程式是您管理個人檔案、動態、地圖、提醒事項和導航功能的基地;而 Discord 則是日常即時對話熱絡進行的場所。
這是專為正經歷極其私密處境的人們所打造的社群空間,我們從一開始便以此為設計初衷。您可以自行選擇顯示名稱。我們不會要求您提供真實姓名、地址、出生日期或診斷詳情。會員地圖採用 k-匿名性閾值為 5,因此絕不會有人能透過位置資料鎖定任何個別會員。所有內容均需登入後方可瀏覽。
沒有廣告。不販售用戶資料。純粹的社群。
登入、設定個人檔案,並在動態消息中打個招呼吧。
Questions or feedback? Send a note from inside the app or email info@tcancer.org.
The Cojone Club® is a registered trademark of the Testicular Cancer Foundation. The app is free to use for anyone in the TC community: patients, survivors, supporters, and caregivers welcome.
您的捐款讓每份指南、線上聊天及客服電話都能持續免費提供。TCF 是一家 501(c)(3) 非營利組織。捐款可抵稅。